about chronic pain from The New York Times - READ Today!
the Rabbit Hole
Story: In July of 1999, I developed Vulvodynia. I didn't know
what was wrong with me. I went to my Gynecologist who ignorantly
told me that it was probably the detergent I was using and sent
me home with yeast infection medication, even though I had explained
that I had used at least 4 doses of it already in the last 6 weeks.
I thought that I might have an STD and so I visited many support
sites. (Does this story sound familiar to any of you?) Well, through
that search I found a doctor who told me the bad news. Three months
after my onset, I had my diagnosis. I was one of the "lucky" ones.
many years my experience with Vulvodynia has changed. I no longer
suffer on a daily basis but my journey was a long hard one. Like
many of you, I tried the conventional route, trying different
medications. I would find initial relief only to then see a reverse
in the effects. I also suffered with some side-effects of the
medications. I found that what the MD's have to offer is little
to nothing and only masks the problem; and never gets to the underlying
cause. With a weight gain of 30lbs on my five ft frame and living
with daily pain I walked into an Acupuncturist's office one day
and started my road to recovery. To read more about my story vist
the following link. www.vulvodyniasupport.com/lauren.html
majority of MD's say it isn't a wide spread disease. Those are
the ones who acknowledge us at all. The rest would like us to
live in the dark ages. They tell us to relax and it will "all
go away". However, estimates show that as many as 15% of all women
develop and suffer from some form of Vulvodynia. Experience has
shown me that not even half have shown their voices. We cannot
wait in silence for a cure, or hope that someone else will raise
their voice. We need to support one another in voicing our rights
for better treatment. It is time to show the world how many of
us there are. It is time to get loud. It is time to take responsibility
for our own recovery. And we can do this together.
It is time to make our voices heard! It is time to take a role
in our recovery. It is time for us to get involved.
have been contacted thousands of times over the years asking for
my help and/or advice. While more than not I have heard "thank
you", I have also gotten some negative responses. I'd like
to believe that means I am doing something right. I believe that
makes me fall right in the middle, taking no sides and makes me
as independent as humanly possible. I do not run this site for
any other reason than to offer some free information and a place
where women can leave queries to reach out to others. I clearly
remember what it was like to live in such pain, be so confused
as to my choices and have little to no information available at
my fingertip. When I started this site five years ago, I wanted
to make sure that noone else has to go through that too.
is what you WON'T find on this site:
- the tauting
- a strong
push for current medications available
I cannot in good faith push current medications or surgery on
the population knowing the side-effects and the efficacy rates
to eleviate the pain. I would never tell any adult they don't
have the options of drugs, but I clearly will not state that I
feel this is the best option. If you read my
story, you will see that I too did go down that road. But
if you are asking for my advice that is not what you will hear
you do reach out for help (to me or another woman who has posted
on this site) here are some key things to keep in mind.
- Be open-minded
and ready to receive answers you wouldn't expect. Those who
came before you have experienced so much and each path has
been very different from the other.
- If you
have a specific question ask it. Don't expect the person you
write to, to be a mind-reader. If you are someone who only
wants to know about drugs say so. If you are not open to alternative
medicine let that person know so they can get you the information
you need or if they can't they can clearly tell you so and
point you to another source.
emailing questions, read this site in its entirety. You just
might be surprised to find the information available to you
already. HINT HINT, there are six main pages on this site
that include a listing of recommended doctors
from other patients, stories from
other patients and even a husband of a sufferer.
doesn't necessarily mean giving you the answer you wanted
to hear. Many times it can end up being just the opposite.
This disease is so complex and we have to be honest with each
other in our truths in order to give the best help and support
to the next woman. Sometimes this can be a sad experience,
but in the end the truth shall help you find the right path
to your healing.
always, wishing you ONLY pain-free days.