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DEAR DOCTORS, DRUG COMPANIES AND RESEARCHERS:

Vulvodynia is a painful chronic vulvar disease with enormous discomfort and pain. Complaints range from burning, stinging, swelling, itching, irritation and rawness of the female genitalia however Vulvodynia pain is highly individualized. The condition varies in persistence and location. Pain may be constant or intermittent, localized or diffuse. In many cases of Vulvodynia, pain occurs spontaneously.

Upon examination, the vulvar tissue may appear inflamed and swollen or it may look perfectly normal. It is common for a woman to consult up to 12 doctors before obtaining an accurate diagnosis. Currently there is no cure for Vulvodynia. Treatments are only directed toward symptom relief. They include drug therapies such as tricyclic antidepressants or anticonvulsants, nerve blocks, interferon, biofeedback, and diet modification. While Vulvodynia, was first described as a syndrome at the end of the last century more than a hundred years have passed and the cause of the disorder remains undiscovered.

Vulvodynia interferes with daily functioning, such as sitting walking and most other physical activity. It often affects one's ability to engage in sexual activity. It can impair one's ability to work, and participate in a social life. These limitations often lead to depression and thoughts of suicide.

We need ongoing and multiple approached researchers to learn the underlying cause of Vulvodynia. We need proper care and medications that help control the pain and discomfort, that helps all forms of Vulvodynia patients to cope with their daily lives. We need dedicated professionals to start and continue researching this disease until a cure is found. We need compassionate professionals to join in the fight against the ignorance that engulfs the sufferers of the disease. We need dedicated people who are committed to figuring out what causes Vulvodynia, and how to treat and cure Vulvodynia.

It has been over 100 years since the "discovery" of Vulvodynia and yet Vulvodynia is virtually ignored by the medical and research community. It is time for the medical and research community to step into the 21st Century and recognize and legitimize our disease and pain by forming a national research foundation that will continually study this disease until a cure is found. It is time to stop our suffering!

Lauren Kunis New York City USA

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Disclaimer:
All posted guestbook entries become the property of the website owner and administrator. The website owner reserves the sole right to keep or take down any post.
**This guestbook in an online petition, searchable by all search engines, by any and all keywords.(this means your name may become searchable in any search engine) If you have any questions about this, please email lauren@vulvodyniasupport.com BEFORE you sign the guestbook.
***Your online signature and support in this ongoing effort is extremely important and appreciated!
****Suggestions for signing the book: If you are uncomfortable about having your full name searchable on the Internet, sign your first initial and your last name, sign your first name and last initial, sign your first name and city you you live in. Example L. Kunis, Lauren K., Lauren/NYC.

Remember, this site is about speaking out, taking the bull by the horns! Each name is important in the fight. It says, I have this and you can't ignore me any longer.

All guestbook entries made through VulvodyniaSupport.com are the full responsibility of the visitor who posted them. The Web site owner bears no responsibility for any posts, nor the searchability of names in any search engine or Web site as a result of a posting.



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Project Dr. Do Little Needs Your Help!-View Page
Vulvodynia Support.com is compiling statements made to VV patients by doctors that have been insensitive, rude, and down-right outrageous. These statements will be listed on the site and presented to the media.

For Example:
I went to my doctor at the age of 19 and expressed I was having pain during intercourse. My OBGYN told me, "You aren't even married. What are you doing having sex? Stop!" (Your First Name, State)

To participate in this very important project please email me at bad_docs@vulvodyniasupport.com Please send your brief story, with your first name only and the state you live in, or the country you live in if outside of the U.S. Please do not send doctor's names. They will not be posted. Please do not list your last names as they will not be posted either.

By sending your story, you are giving Vulvodynia Support.com permission to post and print your story. All stories sent become the property of theVulvodynia Support Website.No last names or names of doctors will be used for this project.

"Well-behaved women rarely make history."
-Let's make a little history of our own! Thanks, Lauren 10/8/02


Disclaimer:
All posted guestbook entries become the property of the website owner and administrator. The website owner reserves the sole right to keep or take down any post.
**This guestbook in an online petition, searchable by all search engines, by any and all keywords.(this means your name may become searchable in any search engine) If you have any questions about this, please email lauren@vulvodyniasupport.com BEFORE you sign the guestbook.
***Your online signature and support in this ongoing effort is extremely important and appreciated!
****Suggestions for signing the book: If you are uncomfortable about having your full name searchable on the Internet, sign your first initial and your last name, sign your first name and last initial, sign your first name and city you you live in. Example L. Kunis, Lauren K., Lauren/NYC.

Remember, this site is about speaking out, taking the bull by the horns! Each name is important in the fight. It says, I have this and you can't ignore me any longer.

All guestbook entries made through VulvodyniaSupport.com are the full responsibility of the visitor who posted them. The Web site owner bears no responsibility for any posts, nor the searchability of names in any search engine or Web site as a result of a posting.