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DEAR DOCTORS, DRUG COMPANIES AND RESEARCHERS: Vulvodynia is a painful chronic vulvar disease with enormous discomfort and pain. Complaints range from burning, stinging, swelling, itching, irritation and rawness of the female genitalia however Vulvodynia pain is highly individualized. The condition varies in persistence and location. Pain may be constant or intermittent, localized or diffuse. In many cases of Vulvodynia, pain occurs spontaneously. Upon examination, the vulvar tissue may appear inflamed and swollen or it may look perfectly normal. It is common for a woman to consult up to 12 doctors before obtaining an accurate diagnosis. Currently there is no cure for Vulvodynia. Treatments are only directed toward symptom relief. They include drug therapies such as tricyclic antidepressants or anticonvulsants, nerve blocks, interferon, biofeedback, and diet modification. While Vulvodynia, was first described as a syndrome at the end of the last century more than a hundred years have passed and the cause of the disorder remains undiscovered. Vulvodynia interferes with daily functioning, such as sitting walking and most other physical activity. It often affects one's ability to engage in sexual activity. It can impair one's ability to work, and participate in a social life. These limitations often lead to depression and thoughts of suicide. We need ongoing and multiple approached researchers to learn the underlying cause of Vulvodynia. We need proper care and medications that help control the pain and discomfort, that helps all forms of Vulvodynia patients to cope with their daily lives. We need dedicated professionals to start and continue researching this disease until a cure is found. We need compassionate professionals to join in the fight against the ignorance that engulfs the sufferers of the disease. We need dedicated people who are committed to figuring out what causes Vulvodynia, and how to treat and cure Vulvodynia. It has been over 100 years since the "discovery" of Vulvodynia and yet Vulvodynia is virtually ignored by the medical and research community. It is time for the medical and research community to step into the 21st Century and recognize and legitimize our disease and pain by forming a national research foundation that will continually study this disease until a cure is found. It is time to stop our suffering! Lauren Kunis New York City USA Sign
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Remember, this site is about speaking out, taking the bull by the horns! Each name is important in the fight. It says, I have this and you can't ignore me any longer. All
guestbook entries made through VulvodyniaSupport.com are the full
responsibility of the visitor who posted them. The Web site owner
bears no responsibility for any posts, nor the searchability of
names in any search engine or Web site as a result of a posting.
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